Divorce in families of patients with cystic fibrosis (CF) may lead to increased health risk for the child.
Five case studies illustrating the adverse impact on the disease status of patients where chronic disagreement and strife occurred between the divorced or separating parents are reviewed.
Problems such as denial, poor understanding of the disease, treatment noncompliance, desertion of the child, and remarriage with new spouses can lead to decreased commitment to the intense CF treatment regimen.
Health care professionals can be effective advocates on behalf of the child caught in the problem of divorce.
They can help the legal system become more sensitive to the needs of the child in the decisions for custody and parental rights as they might impact on the maintenance of treatment and the understanding of a child's vulnerability.
Guidelines are discussed for parents, lawyers and judges.
Mots-clés Pascal : Divorce, Enfant, Homme, Mucoviscidose, Appareil respiratoire pathologie, Appareil digestif pathologie, Pancréas pathologie, Maladie héréditaire, Observance thérapeutique, Traitement, Législation, Réglementation, Besoin, Santé
Mots-clés Pascal anglais : Divorce, Child, Human, Cystic fibrosis, Respiratory disease, Digestive diseases, Pancreatic disease, Genetic disease, Treatment compliance, Treatment, Legislation, Regulation, Need, Health
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 95-0231604
Code Inist : 002A26N03B. Création : 09/06/1995.