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  1. Involving consumers in the development of an educational program for cystic fibrosis carrier screening.

    Article - En anglais

    Input from consumers of health care was sought in developing an educational program to be provided to individuals who are considering carrier testing for cystic fibrosis (CF).

    In addition, we assessed the ability of health professionals to predict consumers' priorities with regard to such information.

    A focus group of six middle school teachers formulated questions that they would ask in trying to decide whether they wanted carrier screening for CF.

    Then, other adults with (n=39) and without (n=60) a family history of CF were presented with the questions and were asked to select the questions in the order in which they would want them answered if offered the carrier test.

    Mots-clés Pascal : Mucoviscidose, Homme, Diagnostic, Dépistage, Programme enseignement, Conseil génétique, Information public, Consommateur, Appareil respiratoire pathologie, Appareil digestif pathologie, Pancréas pathologie, Maladie héréditaire

    Mots-clés Pascal anglais : Mucoviscidosis, Human, Diagnosis, Medical screening, Educational program, Genetic counseling, Public information, Consumer, Respiratory disease, Digestive diseases, Pancreatic disease, Genetic disease

    Logo du centre Notice produite par :
    Inist-CNRS - Institut de l'Information Scientifique et Technique

    Cote : 94-0329933

    Code Inist : 002B23A. Création : 199406.