Privacy rules for DNA databanks : protecting coded future diaries.
In privacy terms, genetic information is like medical information.
But the information contained in the DNA molecule itself is more sensitive because it contains an individual's probabilistic « future diary, » is written in a code that has only partially been broken, and contains information about an individual's parents, siblings, and children.
Current rules for protecting the privacy of medical information cannot protect either genetic information or identifiable DNA samples stored in DNA databanks.
A review of the legal and public policy rationales for protecting genetic privacy suggests that specific enforceable privacy rules for DNA databanks are needed.
Mots-clés Pascal : Organisation santé, Exploration, Homme, DNA, Donnée, Banque, Ethique
Mots-clés Pascal anglais : Public health organization, Exploration, Human, DNA, Data, Bank(institution), Ethics
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 94-0092886
Code Inist : 002B30A09. Création : 199406.