Background In addition to medical care, dying patients often need many types of assistance, including help with transportation, nursing care, homemaking services, and personal care.
We interviewed terminally ill adults and their care givers in six randomly selected areas of the United States (five metropolitan areas and one rural county) to determine how their needs for assistance were met and the frequency with which they received such assistance from family members and paid and volunteer care givers.
Methods The patients, whose physicians estimated them to have less than six months to live and who had clinically significant illness other than human immunodeficiency virus infection or the acquired immunodeficiency syndrome, were referred to the study by their physicians.
Of the 1131 eligible patients, 988 (87.4 percent) consented to a detailed inperson interview conducted in English, as did 893 ol the 915 eligible primary care givers (97.6 percent).
Results Of the 988 terminally ill patients, 59.4 percent were over the age of 65 years, and 51.5 percent were women.
The most frequent terminal illness was cancer (in 51.8 percent of the patients), followed by heart disease (18.0 percent) and chronic obstructive pulmonary disease (10.9 percent).
Four percent of the patients were in an institution, such as a nursing home, residential hospice, or hospital ; the rest were living in a private residence.
A need for assistance was reported by 86. (...)
Mots-clés Pascal : Etats Unis, Amérique du Nord, Amérique, Epidémiologie, Homme, Maladie, Stade terminal, Evaluation, Besoin, Etude multicentrique, Utilisation, Surveillance sanitaire, Milieu familial, Personnel sanitaire, Volontaire, Assitance
Mots-clés Pascal anglais : United States, North America, America, Epidemiology, Human, Disease, Terminal stage, Evaluation, Need, Multicenter study, Use, Sanitary surveillance, Family environment, Health staff, Volunteer
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 99-0508950
Code Inist : 002B30A03C. Création : 22/03/2000.