To assess the relationship between acculturation and clinical, socioeconomic-demographic, and behavioral/psychosocial features in Hispanic patients with systemic lupus erythematosus (SLE) from the LUMINA (Lupus in Minority Populations, Nature versus Nurture cohort.
An empirically derived questionnaire was administered to 67 Mexican American SLE patients participating in a longitudinal study of outcome.
This questionnaire inquired about place of birth, upbringing and length of stay in the United States, language (proficiency, usage, and preferences.
English/bilingual versus Spanish), type of neighborhood, self-identity, and social interactions.
Responses to this questionnaire and an informal interaction with a single bilingual, bicultural Mexican American research assistant were used to generate a score on a 10-cm anchored visual analog scale (VAS) (0=no acculturation and 10=maximum acculturation).
The responses to the questionnaire were then quantified and scored by a physician who was unaware of the VAS.
A composite score was then obtained utilizing 4 of the 6 components of the instrument.
The VAS was found to have adequate sensitivity (91%), specificity (88%), and overall predictive value (89%) when the composite score was used as the validity criterion.
Therefore, the VAS was used in all subsequent analyses : the median in this VAS separated patients into high and low acculturation groups. (...)
Mots-clés Pascal : Lupus érythémateux, Disséminé, Pronostic, Epidémiologie, Ethnie, Psychométrie, Questionnaire, Echelle mesure, Milieu culturel, Facteur risque, Homme, Peau pathologie, Tissu conjonctif pathologie, Maladie système, Maladie autoimmune, Immunopathologie, Facteur socioculturel
Mots-clés Pascal anglais : Lupus erythematosus, Disseminated, Prognosis, Epidemiology, Ethnic group, Psychometrics, Questionnaire, Measurement scale, Cultural environment, Risk factor, Human, Skin disease, Connective tissue disease, Systemic disease, Autoimmune disease, Immunopathology
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 99-0423636
Code Inist : 002B07. Création : 22/03/2000.