Context In neonatal intensive care, parents make important clinical management decisions in conjunction with health care professionals.
Yet little information is available on whether preferences of health care professionals and parents for the resulting health outcomes differ.
Objective To measure and compare preferences for selected health states from the perspectives of health care professionals (ie, neonatologists and neonatal nurses), parents of extremely low-birth-weight (ELBW) or normal birth-weight infants, and adolescents who were either ELBW or normal birth-weight infants.
Design Cross-sectional cohort study.
Setting and Participants A total of 742 participants were recruited and interviewed between 1993 and 1995, including 100 neonatologists from hospitals throughout Canada ; 103 neonatal nurses from 3 regional neonatal intensive care units ; 264 adolescents (aged 12-16 years), including 140 who were ELBW infants and 124 sociodemographically matched term controls ; and 275 parents of the recruited adolescents.
Main Outcome Measure Preferences (utilities) for 4 to 5 hypothetical health states of children were obtained by direct interviews using the standard gamble method.
Results Overall, neonatologists and nurses had similar preferences for the 5 health states, and a similar proportion rated some health states as worse than death (59% of neonatologists and 68% of nurses ; P=20). (...)
Mots-clés Pascal : Néonatal, Etude cohorte, Unité soin intensif, Poids naissance extrêmement faible, Pratique professionnelle, Qualité vie, Préférence individuelle, Parent, Adolescent, Homme, Etude transversale, Evolution démographique, Conduite à tenir, Prévention, Organisation santé, Pédiatrie
Mots-clés Pascal anglais : Neonatal, Cohort study, Intensive care unit, Extremely low birthweight, Professional practice, Quality of life, Individual preference, Parent, Adolescent, Human, Cross sectional study, Demographic evolution, Clinical management, Prevention, Public health organization, Pediatrics
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 99-0336178
Code Inist : 002B30A03B. Création : 16/11/1999.