logo BDSP

Base documentaire


Votre avis nous intéresse

Le réseau BDSP met en oeuvre un projet d'innovation et d'amélioration de ses services, dans le souci constant de proposer des contenus de qualité adaptés aux besoins des utilisateurs.

Identifier de nouvelles sources de financements est la condition nécessaire pour assurer la poursuite et la pérennité de cet outil unique qu'est la BDSP, tout en le faisant évoluer.

Pour définir un nouveau modèle économique, nous avons besoin de votre avis : merci de répondre à notre enquête (temps estimé : 5 minutes).

Participer maintenant
Participer plus tard J'ai déjà participé

  1. Differences in Preferences for neonatal outcomes among health care professionals, parents, and adolescents.

    Article - En anglais

    Context In neonatal intensive care, parents make important clinical management decisions in conjunction with health care professionals.

    Yet little information is available on whether preferences of health care professionals and parents for the resulting health outcomes differ.

    Objective To measure and compare preferences for selected health states from the perspectives of health care professionals (ie, neonatologists and neonatal nurses), parents of extremely low-birth-weight (ELBW) or normal birth-weight infants, and adolescents who were either ELBW or normal birth-weight infants.

    Design Cross-sectional cohort study.

    Setting and Participants A total of 742 participants were recruited and interviewed between 1993 and 1995, including 100 neonatologists from hospitals throughout Canada ; 103 neonatal nurses from 3 regional neonatal intensive care units ; 264 adolescents (aged 12-16 years), including 140 who were ELBW infants and 124 sociodemographically matched term controls ; and 275 parents of the recruited adolescents.

    Main Outcome Measure Preferences (utilities) for 4 to 5 hypothetical health states of children were obtained by direct interviews using the standard gamble method.

    Results Overall, neonatologists and nurses had similar preferences for the 5 health states, and a similar proportion rated some health states as worse than death (59% of neonatologists and 68% of nurses ; P=20). (...)

    Mots-clés Pascal : Néonatal, Etude cohorte, Unité soin intensif, Poids naissance extrêmement faible, Pratique professionnelle, Qualité vie, Préférence individuelle, Parent, Adolescent, Homme, Etude transversale, Evolution démographique, Conduite à tenir, Prévention, Organisation santé, Pédiatrie

    Mots-clés Pascal anglais : Neonatal, Cohort study, Intensive care unit, Extremely low birthweight, Professional practice, Quality of life, Individual preference, Parent, Adolescent, Human, Cross sectional study, Demographic evolution, Clinical management, Prevention, Public health organization, Pediatrics

    Logo du centre Notice produite par :
    Inist-CNRS - Institut de l'Information Scientifique et Technique

    Cote : 99-0336178

    Code Inist : 002B30A03B. Création : 16/11/1999.