The experiences and views of parents who care for ventilator-dependent children.
Discussion in this paper is drawn from the literature examining the management of children with long-term assisted ventilation, and a study of parents'experiences and views of caring for their ventilator-dependent child at home.
Difficulties in undertaking research into this group of children are highlighted.
Recommendations are proposed regarding future multidisciplinary, multiagency service development in order to meet the needs of ventilator-dependent children and their families.
Mots-clés Pascal : Ventilation assistée, Perception sociale, Parent, Expérience personnelle, Coping, Soin, Evaluation, Enfant, Homme, Questionnaire, Soin intensif, Appareil respiratoire pathologie
Mots-clés Pascal anglais : Assisted ventilation, Social perception, Parent, Personal experience, Coping, Care, Evaluation, Child, Human, Questionnaire, Intensive care, Respiratory disease
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 99-0331251
Code Inist : 002B30A11. Création : 16/11/1999.