Quality of Life in Childhood Inflammatory Bowel Diseases. International Meeting. Manchester, GBR, 1997/09/17.
Children with Crohn's disease may have an impaired quality of life.
A validated questionnaire was mailed to the parents of all child members of Crohn's in Childhood Research Association (CICRA) (age range, 5-17 years).
It investigated aspects of the quality of life of children with Crohn's disease.
Sixty-four questionnaires were returned together with another 35 from those outside the defined age range.
Patients in the latter group were not included in the analysis.
Of the children investigated, 60% had significant absences from school, with a mean of 3 ± 2.8 months'absence in the previous year.
Most (53%) thought that their teachers knew nothing about Crohn's disease, and 50% thought that teachers were unsympathetic.
Of the 24 who had taken examinations 80% thought they had underachieved because of ill health.
Sixty-seven percent of children were unable to participate in sports on a regular basis, 60% felt unable to leave the house, and 50% were unable to play with their friends.
Information about Crohn's disease had predominantly come from doctors (89%), information booklets (83%), and nursing staff (42%). The commonest questions asked by the children were : what is Crohn's disease (50%), why me (64%), will it affect my schooling (52%), and will it affect my chances of getting a job (67%). Conclusion : Children with Crohn's disease have a significantly impaired quality of life. (...)
Mots-clés Pascal : Entérite Crohn, Evaluation, Qualité vie, Risque, Association morbide, Questionnaire, Handicap, Education, Scolarisation, Milieu familial, Projet existentiel, Exploration, Enfant, Homme, Appareil digestif pathologie, Intestin pathologie, Maladie inflammatoire
Mots-clés Pascal anglais : Crohn disease, Evaluation, Quality of life, Risk, Concomitant disease, Questionnaire, Handicap, Education, School enrollment, Family environment, Existential project, Exploration, Child, Human, Digestive diseases, Intestinal disease, Inflammatory disease
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 99-0229206
Code Inist : 002B13B03. Création : 16/11/1999.