Quality of Life in Childhood Inflammatory Bowel Diseases. International Meeting. Manchester, GBR, 1997/09/17.
In the past, quality of life was primarily assessed using objective measurements of the condition of the patient.
Today, most quality-of-life measurements include several aspects regarding the patient's opinions and feelings.
There has been an extensive development of quality-of-life instruments particularly in adults, including those for people with inflammatory bowel disease (IBD).
However, only a few instruments, mostly questionnaires, have been developed for the pediatric population.
It has been noted, even in young patients with IBD. that there is reduced self-esteem and more anxiety and depression.
Altogether, these are important aspects for early measurement of psychosocial functioning and possibly intervention during the treatment of children with IBD.
For the current study, an instrument was developed for young children aged 5 years or more in which a computer-based animated program was used to measure quality of life in children with inflammatory bowel disease.
The instrument was designed to be similar for boys and girls with no reference to racial identity.
In addition, it was culturally acceptable for all Dutch children.
The program was in the form of a story of a bear and a clown playing in an attic of an old house where they come across many objects with which they play and where many adventures occur.
All 35 questions were interwoven in this story. (...)
Mots-clés Pascal : Rectocolite ulcérohémorragique, Entérite Crohn, Evaluation, Qualité vie, Appareil mesure, Programme diagnostic, Assistance ordinateur, Evaluation performance, Enfant, Homme, Appareil digestif pathologie, Intestin pathologie, Maladie inflammatoire, Informatique biomédicale
Mots-clés Pascal anglais : Ulcerative colitis, Crohn disease, Evaluation, Quality of life, Measuring instrument, Diagnostic program, Computer aid, Performance evaluation, Child, Human, Digestive diseases, Intestinal disease, Inflammatory disease, Biomedical data processing
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 99-0227201
Code Inist : 002B30A01C. Création : 16/11/1999.