Quality of Life in Childhood Inflammatory Bowel Diseases. International Meeting. Manchester, GBR, 1997/09/17.
Focus group meetings were held with two groups, each containing 12 children with Crohn's disease aged 8 to 12 and 12 to 17 years.
The children were asked broad questions about how Crohn's disease and its treatment affected their lives.
To explore these areas in more detail, an 88-item questionnaire was developed and read to an additional 16 of 20 children with Crohn's disease selected at random from outpatients.
At first, many of the children denied that Crohn's disease affected their lives at all, but it soon became apparent that many were frustrated or angry about physical symptoms, lack of understanding about Crohn's disease, unpleasant investigations. treatment, and hospitalisation.
The questionnaire covered six domains of health-related quality of life including symptoms and treatment, social, emotional, family, educational, and future aspects.
Elemental diet was the preferred treatment, although surgery was more effective in controlling symptoms.
Children receiving steroids had more depressive symptoms.
Absenteeism from school and inability to engage in school sports, swimming, and running were frequent problems.
There were also difficulties with taking holidays and staying at friends'houses.
Worry was reported in 14 of 16 children, anger and frustration and feeling fed up in 12 of 16. (...)
Mots-clés Pascal : Entérite Crohn, Evaluation, Qualité vie, Questionnaire, Groupe fonctionnel, Témoignage, Handicap, Exploration, Enfant, Homme, Appareil digestif pathologie, Intestin pathologie, Maladie inflammatoire
Mots-clés Pascal anglais : Crohn disease, Evaluation, Quality of life, Questionnaire, Functional group, Testimony, Handicap, Exploration, Child, Human, Digestive diseases, Intestinal disease, Inflammatory disease
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 99-0227185
Code Inist : 002B13B03. Création : 16/11/1999.