To develop a short instrument, called DISCERN, which will enable patients and information providers to judge the quality of written information about treatment choices.
DISCERN will also facilitate the production of new, high quality, evidence-based consumer health information.
Design-An expert panel, representing a range of expertise in consumer health information, generated criteria from a random sample of information for three medical conditions with varying degrees of evidence : myocardial infarction, endometriosis, and chronic fatigue syndrome.
A draft instrument, based on this analysis, was tested by the panel on a random sample of new material for the same three conditions.
The panel re-drafted the instrument to take account of the results of the test.
The DISCERN instrument was finally tested by a national sample of 15 information providers and 13 self help group members on a random sample of leaflets from 19 major national self help organisations.
Participants also completed an 8 item questionnaire concerning the face and content validity of the instrument.
Chance corrected agreement (weighted kappa) for the overall quality rating was kappa=0.53 (95% CI kappa=0.48 to kappa=0.59) among the expert panel, kappa=0.40 (95% CI kappa=0.36 to kappa=0.43) among information providers, and K=0.23 (95% CI kappa=0.19 to kappa=0.27) among self help group members. (...)
Mots-clés Pascal : Royaume Uni, Europe, Homme, Education santé, Méthodologie, Information biomédicale, Communication information, Communication écrite, Evaluation, Qualité, Prise décision
Mots-clés Pascal anglais : United Kingdom, Europe, Human, Health education, Methodology, Biomedical information, Information communication, Written communication, Evaluation, Quality, Decision making
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 99-0126980
Code Inist : 002B30A01A1. Création : 16/11/1999.