Objectives To identify the number and current location of children, aged 0 to 16 years, requiring long term ventilation in the United Kingdom, and to establish their underlying diagnosis and ventilatory needs.
Design Postal questionnaires sent to consultant respiratory paediatricians and all lead clinicians of intensive care and special care baby units in the United Kingdom.
Subjects All children in the United Kingdom who, when medically stable, continue to need a mechanical aid for breathing.
Results 141 Children requiring long term ventilation were identified from the initial questionnaire.
Detailed information was then obtained on 136 children from 30 units.
Thirty three children (24%) required continuous positive pressure ventilation by tracheostomy over 24 hours, and 103 received ventilation when asleep by a non-invasive mask (n=62 ; 46%), tracheostomy (n=32 ; 24%), or negative pressure ventilation (n=9 ; 7%). Underlying conditions included neuromuscular disease (n=62 ; 46%), congenital central hypoventilation syndrome (n=18 ; 13%), spinal injury (n=16 ; 12%), craniofacial syndromes (n=9 ; 7%), bronchopulmonary dysplasia (n=6 ; 4%), and others (n=25 ; 18%), 93 children were cared for at home. 43 children remained in hospital because of home cirucumstances, inadequate funding, or lack of provision of home carers. 96 children were of school age and 43 were attending mainstream school. (...)
Mots-clés Pascal : Insuffisance respiratoire, Ventilation artificielle, Epidémiologie, Pronostic, Long terme, Fonction respiratoire, Enfant, Homme, Royaume Uni, Europe, Questionnaire, Appareil respiratoire pathologie
Mots-clés Pascal anglais : Respiratory failure, Artificial ventilation, Epidemiology, Prognosis, Long term, Lung function, Child, Human, United Kingdom, Europe, Questionnaire, Respiratory disease
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 99-0113812
Code Inist : 002B27B02. Création : 16/11/1999.