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  1. Preventive services received by Adolescents with cystic fibrosis and sickle cell disease.

    Article - En anglais


    To determine the proportion of adolescents with cystic fibrosis (CF) or sickle cell disease (SCD) who reported speaking with their physicians about health-promoting and risky behaviors and whether the rate of discussions varied by whether the main physician was a primary care provider or specialist.

    Hypothesis : Adolescents reporting a primary care provider as their main physician would be more likely to have received risk behavior counseling and other preventive services.




    Comprehensive CF and SCD centers in 5 North Carolina referral hospitals. participants : Three hundred twenty-one (74%) of 437 adolescents aged 12 through 19 years (mean age, 15.6 years ; 51% male) with CF or SCD identified through center registries.

    Main Outcome Measures 

    Sources of health care, main physician, and recall of discussions with physicians regarding sexual issues, substance use, weight or dieting, safety issues, depression, and violence.


    Adolescents with CF (53%) or SCD (46%) most commonly reported a specialist as their main physician.

    For those (83%) who saw their main physician in the past year, adolescents with SCD reported counseling rates ranging from 43% for sexuality to 15% for weapon carrying or fighting.

    For adolescents with CF, rates ranged from 65% for weight and dieting to 30% for sexuality and 6% for weapon carrying or fighting. (...)

    Mots-clés Pascal : Mucoviscidose, Médecin, Education santé, Anémie hématie falciforme, Prévention, Violence, Toxicomanie, Sexualité, Diététique, Alcoolisme, Dépression, Etude statistique, Adolescent, Homme, Adulte jeune, Appareil respiratoire pathologie, Appareil digestif pathologie, Pancréas pathologie, Maladie héréditaire, Métabolisme pathologie, Hémopathie, Anémie hémolytique, Hémoglobinopathie, Psychopathologie

    Mots-clés Pascal anglais : Cystic fibrosis, Physician, Health education, Sickle cell anemia, Prevention, Violence, Drug addiction, Sexuality, Dietetics, Alcoholism, Depressions, Statistical study, Adolescent, Human, Young adult, Respiratory disease, Digestive diseases, Pancreatic disease, Genetic disease, Metabolic diseases, Hemopathy, Hemolytic anemia, Hemoglobinopathy, Psychopathology

    Logo du centre Notice produite par :
    Inist-CNRS - Institut de l'Information Scientifique et Technique

    Cote : 99-0093404

    Code Inist : 002B30A03B. Création : 31/05/1999.