Active surveillance has not been widely used in ophthalmologic research.
The use of capture-recapture analysis to determine completeness of case ascertainment by active surveillance in a national study of congenital cataract is reported.
In I year in the United Kingdom, all incident diagnoses of congenital and infantile cataract were notified through independent ophthalmic and pediatric active surveillance schemes.
Two-source capture-recapture analysis was applied to assess the level of ascertainment of infants (age <=12 months) by these two schemes.
In a 12-month period. 161 infants with newly diagnosed congenital or infantile cataract were notified.
Overall ascertainment was estimated to he 92% complete and was higher in the ophthalmic (85%) than in the pediatric (45%) scheme.
Comparison with the number of cases expected, from disease frequency reported in existing national congenital anomaly notification systems, suggests previous underascertainment of congenital cataract in such passive reporting systems.
This study shows the effectiveness of two source active surveillance in identifying a nationally representative cohort that will provide better information about this disorder than has been available from sources of routinely collected data.
Mots-clés Pascal : Cataracte, Congénital, Méthode capture recapture, Surveillance, Efficacité, Méthode statistique, Epidémiologie, Enfant, Homme, Oeil pathologie, Cristallin pathologie, Segment antérieur pathologie, Maladie congénitale
Mots-clés Pascal anglais : Cataract, Congenital, Capture recapture method, Surveillance, Efficiency, Statistical method, Epidemiology, Child, Human, Eye disease, Lens disease, Anterior segment disease, Congenital disease
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 99-0086762
Code Inist : 002B09G. Création : 31/05/1999.