Establishing a computerized tumor registry : The Eastern Province experience.
Programs for effective cancer care include facilities for cancer research, prevention and treatment as well as a regional or national cancer registry.
The Computerized Tumor Registry Project at King Faisal University is the first attempt to establish a population-based Tumor Registry at a regional level in the Kingdom of Saudi Arabia (KSA).
This paper discusses the steps taken to set up the registry and analyzes the achievements and obstacles.
Developing the registry required project manpower, computer software and other non-human resources including procedure and system manuals, data entry and follow-up formats, as well as reportable lists, confidentiality code, legislation, data collection procedures, a way to estimate the population of the Eastern Province and quality control measures.
The project achievements and major obstacles were outlined.
Measures to ensure completeness of the registration, updating the census and improving quality control were recommended.
Mots-clés Pascal : Tumeur maligne, Informatisation, Registre, Informatique, Méthodologie, Arabie Saoudite, Asie, Homme, Epidémiologie
Mots-clés Pascal anglais : Malignant tumor, Computerization, Register, Computer science, Methodology, Saudi Arabia, Asia, Human, Epidemiology
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 98-0480525
Code Inist : 002B30A01A2. Création : 19/02/1999.