Advances in medical care have led to a growing population of special needs children who are at risk for suboptimal care when they present to a physician with no previous knowledge of their medical history.
This risk may be amplified in the emergency department setting when time-sensitive interventions must be initiated without immediate access to consultants or past records.
Our purpose in this study was to evaluate caretakers'knowledge of their children's chronic medical problems and their ability to relate this knowledge to unfamiliar health care providers.
Caretaker/child pairs presenting for specialty visits were surveyed.
Questions focused on knowledge of the child's illness, medicine regime, and how to contact the specialist.
Chart review confirmed responses of caretakers and provided sociodemographic information.
Descriptive statistics and x2 were used in data analysis.
Of the 49 caretakers interviewed, 85% were parents, 53% were African-American, and 43% were Caucasian.
One-half of the group received medical assistance.
The mean age of the children was 55 months.
Responses showed that 53% of caretakers were unable to provide their children's specific diagnoses.
Of these, one half could provide a lay diagnosis whereas the remaining one half could only identify the organ system involved or that there was a problem.
For children on medications, 29% of caretakers could not provide an accurate list. (...)
Mots-clés Pascal : Connaissance, Milieu familial, Maladie, Soin santé primaire, Chronique, Evaluation, Analyse statistique, Enfant, Homme
Mots-clés Pascal anglais : Knowledge, Family environment, Disease, Primary health care, Chronic, Evaluation, Statistical analysis, Child, Human
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 98-0425771
Code Inist : 002B30A01C. Création : 25/01/1999.