This paper presents a conceptual framework for understanding how Japanese family caregivers make decisions about the use of formal services such as adult day care, short term hospital stays, and long-term institutionalization.
Using grounded theory methodology, 26 Japanese daughters or daughters-in-law who were caring for an elderly demented parent or parent-in-law were interviewed.
From these data, an overall process of « navigating among endorsed options » evolved.
This process was set in motion when caregivers reached the limit of their tolerance, a point at which they felt they could not continue caregiving under the given arrangement.
Caregivers then began to assess three issues which determined whether or not they used formal services :
the availability of services ;
their authority level within the family ;
and whether or not they could justify their tolerance limit.
The availability of a service was determined by the quality of the service, the distance to the service, the sanctions that would incur as a result of using the service, information about the service, and the quantity of the service.
The caregivers'authority within the family varied depending on such factors as how much the caregiver was accepted by her married family or the type of family business.
This authority level determined whether and how the caregivers could approach other family members in order to obtain their consent to use formal services. (...)
Mots-clés Pascal : Utilisation, Service santé, Milieu familial, Aidant, Aide thérapeutique, Démence sénile, Vieillard, Homme, Prise décision, A domicile, Japon, Asie, Système nerveux pathologie, Système nerveux central pathologie, Encéphale pathologie, Maladie dégénérative
Mots-clés Pascal anglais : Use, Health service, Family environment, Caregiver, Therapeutic assistance, Senile dementia, Elderly, Human, Decision making, At home, Japan, Asia, Nervous system diseases, Central nervous system disease, Cerebral disorder, Degenerative disease
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 98-0422834
Code Inist : 002B30A01B. Création : 25/01/1999.