A community survey of children with severe intellectual disability and their families : psychological adjustment, carer distress and the effect of respite care.
The present paper describes a cross-sectional study of the psychosocial adjustment of 143 children with severe disability and their families identified from a regional case register for children with special needs.
Thirty-eight per cent of the children had significant psychiatric morbidity.
By contrast, the overall level of distress in carers was not that different from probable community prevalence figures.
Nevertheless, distress among carers was consistently associated with increased disability in the child.
Although respite care is a valuable resource for many carers, its use is indicative of underlying distress in the carer.
Mots-clés Pascal : Arriération mentale, Aidant, Stress, Adaptation, Milieu familial, Enquête, Royaume Uni, Europe, Enfant, Homme, Déficience intellectuelle, Trouble développement
Mots-clés Pascal anglais : Mental retardation, Caregiver, Stress, Adaptation, Family environment, Survey, United Kingdom, Europe, Child, Human, Intellectual deficiency, Developmental disorder
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 98-0354668
Code Inist : 002B18H07. Création : 25/01/1999.