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  1. Evaluation of a statewide program in genetic diseases.

    Article - En anglais

    We used the Genetics Office Automation System (GOAS), a database management system designed to facilitate collection and analysis of medical genetic data, to evaluate the Missouri Genetics Disease Program (MGDP).

    From 1985 through 1995, patient data were collected at four tertiary care genetic centers.

    The number of genetic visits per 100,000 people more than doubled from 1985 through 1995.

    The results of subpopulation analyses indicate that the MGDP has facilitated improvements in : (1) services for newborns and infants, (2) rural outreach programs, and (3) evaluation of the incidence and impact of genetic disorders.

    Mots-clés Pascal : Etude longitudinale, Etude multicentrique, Maladie héréditaire, Epidémiologie, Homme, Etats Unis, Amérique du Nord, Amérique, Programme sanitaire, Evaluation, Système gestion base donnée, Conseil génétique, Génétique

    Mots-clés Pascal anglais : Follow up study, Multicenter study, Genetic disease, Epidemiology, Human, United States, North America, America, Sanitary program, Evaluation, Database management system, Genetic counseling, Genetics

    Logo du centre Notice produite par :
    Inist-CNRS - Institut de l'Information Scientifique et Technique

    Cote : 98-0345868

    Code Inist : 002B23A. Création : 27/11/1998.