In the Special Issue of the Journal of Interprofessional Care (11 (2), 1997) devoted to the user voice, David Bamford and his colleagues analysed consumer satisfaction with services in cerebral palsy care, across the medical, educational and social care professions.
This paper uses existing literature and research to extend the discussion beyond those raised by them in relation to'glaring deficiencies'in the field of total care.
It argues that there is nothing new in recognising, but failing to address, such deficiencies in the welfare system for the UK and discusses what the reasons for this might be, given the explicit mandate in the Children Act for England and Wales to ameliorate the effects of disability.
In particular it balances the parental viewpoint with that of the child, and emphasises the professional difficulties in managing that balance.
It raises the inconvenient complication of child abuse, which is still not widely accepted as a problem for disabled children despite overwhelming research evidence.
Mots-clés Pascal : Handicap, Enfant, Homme, Service santé, Satisfaction, Evaluation, Utilisateur, Royaume Uni, Europe, Article synthèse
Mots-clés Pascal anglais : Handicap, Child, Human, Health service, Satisfaction, Evaluation, User, United Kingdom, Europe, Review
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 98-0296195
Code Inist : 002B30A01C. Création : 27/11/1998.