Little research has been done on services and programs for children with chronic conditions and their families from the perspective of family caregivers from diverse cultural backgrounds.
To identify recommendations that urban care-giving families from 3 major ethnocultural backgrounds have for improving the care of children with chronic conditions (ie, chronic illnesses and disabilities involving physical health impairments).
Qualitative, community-based study.
The volunteer convenience sample included 21 African American, 20 Hispanic, and 22 European American families from 2 midwestern cities who care for school-aged children with chronic conditions.
In-home semistructured interviews were conducted with each child's family caregivers.
Content analytic techniques were used to identify and classify 275 recommendations from 63 families.
Families focused on the following 4 topics :
(1) improving the quality of health care services ;
(2) decreasing barriers to services and programs ;
(3) improving the training that health care professionals, families, and the public receive about chronic conditions and their management ;
and (4) improving the quality and availability of community-based services. (...)
Mots-clés Pascal : Chronique, Maladie, Programme sanitaire, Aspect culturel, Aidant, Etude familiale, Recommandation, Politique sanitaire, Enfant, Homme
Mots-clés Pascal anglais : Chronic, Disease, Sanitary program, Cultural aspect, Caregiver, Family study, Recommendation, Health policy, Child, Human
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 98-0294272
Code Inist : 002B30A03B. Création : 27/11/1998.