Twenty-seven adults with sickle cell disease previously admitted to hospital during a painful sickling crisis were interviewed in order to explore their experiences of hospital haemoglobinopathy services and the psychological impact of the disease.
Evidence was gained of global psychological distress, depression and anxiety in the sample.
Patients also reported criticisms of hospital services particularly with regard to staff attitudes and the giving of analgesia.
Recommendations are made for improving the delivery of hospital and community services for this population.
Mots-clés Pascal : Anémie hématie falciforme, Milieu hospitalier, Service santé, Qualité, Satisfaction, Attitude, Stress, Coping, Homme, Hémopathie, Anémie hémolytique, Hémoglobinopathie, Maladie héréditaire
Mots-clés Pascal anglais : Sickle cell anemia, Hospital environment, Health service, Quality, Satisfaction, Attitude, Stress, Coping, Human, Hemopathy, Hemolytic anemia, Hemoglobinopathy, Genetic disease
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 98-0272476
Code Inist : 002A26N03B. Création : 27/11/1998.