Epilepsy and Sudden Death. International Workshop. London, GBR, 1996/10/28.
Epilepsy Bereaved ? is a charity representing those who have experienced the sudden death of a loved one due to epilepsy.
Many individuals with epilepsy, as well as their partners, relatives, and friends, are unaware of the risk for sudden unexpected death in epilepsy (SUDEP).
Much of the literature available does not include information on SUDEP.
When information is given, the risk for SUDEP may be underestimated.
Epilepsy Bereaved ? believes that people with epilepsy and their partners, families, and friends have the same right to be informed as any others dealing with a chronic condition, unless they express a wish to the contrary.
Information should include the risk for SUDEP.
Bereaved families agree that they would rather have been informed of the risks than left ignorant.
Increased awareness and understanding of this condition may help improve treatment compliance and enable individuals to take measures to reduce the risk for sudden death.
Mots-clés Pascal : Epilepsie, Mort subite, Deuil, Support social, Coping, Communication information, Organisation système, Homme, Système nerveux pathologie, Système nerveux central pathologie, Encéphale pathologie, Complication, Organisme caritatif
Mots-clés Pascal anglais : Epilepsy, Sudden death, Mourning, Social support, Coping, Information communication, System configuration, Human, Nervous system diseases, Central nervous system disease, Cerebral disorder, Complication
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 98-0084948
Code Inist : 002B17A03. Création : 14/05/1998.