The goal of this study was to evaluate the physical and psychosocial impact of juvenile rheumatoid arthritis (JRA) among a population-based cohort of adults who had the disease during childhood, compared with a control cohort of subjects with no history of JRA.
The Rochester Epidemiology Project database was used to identify all cases of JRA (based on the American College of Rheumatology [formerly, the American Rheumatism Association] 1977 criteria) among Rochester, Minnesota residents first diagnosed between January 1,1960 and December 31,1993.
Controls were age-and sex-matched to the cases as of the date of diagnosis of JRA.
A pretested postal survey was mailed to all adult cases (whose date of birth was before December 31,1975) and matched controls from the same population, to obtain information on socioeconomic issues and functional status (using the Health Assessment Questionnaire and the Health Status Questionnaire).
The complete medical records of all cases and controls were reviewed to obtain information on demographics and clinical manifestations of JRA.
Of the 50 eligible cases, 44 (88%) responded to the survey.
There were 102 age-and sex-matched controls (2-3 per case) who responded to the survey.
Seventy-three percent of the cases had pauciarticular-onset JRA, 16% had polyarticular-onset JRA, and 11% had systemic-onset JRA.
Average followup was 24.7 years and 24.5 years after the index date for cases and controls, respectively. (...)
Mots-clés Pascal : Arthrite chronique juvénile, Age apparition, Enfant, Homme, Epidémiologie, Etude impact, Long terme, Statut socioéconomique, Bien être psychologique, Psychométrie, Pronostic, Adulte, Chronique, Système ostéoarticulaire pathologie, Rhumatisme inflammatoire
Mots-clés Pascal anglais : Juvenile rheumatoid arthritis, Age of onset, Child, Human, Epidemiology, Impact study, Long term, Socioeconomic status, Psychological well being, Psychometrics, Prognosis, Adult, Chronic, Diseases of the osteoarticular system, Inflammatory joint disease
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 98-0057238
Code Inist : 002B15D. Création : 14/05/1998.