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  1. Evaluation of the RFIPC, a disease-specific health-related quality of life questionnaire, in Swedish patients with ulcerative colitis.

    Article - En anglais

    Background 

    We wanted to characterize a Swedish version of the Rating Form of Inflammatory Bowel Disease Patient Concerns (RFIPC) with regard to validity, reliability, and responsiveness.

    Methods 

    Two hundred and three consecutive patients with ulcerative colitis were studied.

    Health-related quality of life (HRQOL) was measured with the disease-specific questionnaire, the RFIPC, and a general questionnaire, the Sickness Impact Profile (SIP).

    Concerns about general well-being were also reported.

    Disease activity was measured by means of symptom cards, laboratory tests, and two clinical indices for disease activity.

    Results 

    Test-retest reliability using Spearman's r (rs) was 0.79, and internal consistency measured with Cronbach's alpha was 0.95.

    RFIPC had a fair correlation with concerns about general well-being (rs=0.69, P<0.001).

    There was also a stronger correlation with another measure of HRQOL, the overall SIP score (rs=0.43), than with measures of disease activity such as stool frequency (rs=0.28) and sigmoidoscopic grading (NS).

    The group of patients in relapse had a higher RFIPC sum score than patients in remission (P=0.001).

    Measures of HRQOL had a low correlation with disease activity and did not respond to changes in disease activity.

    Conclusion 

    The Swedish version of the RFIPC is a valid and reliable measure of HRQOL.

    The SIP and the RFIPC have a good discriminative ability between groups of patients in remission and in relapse. (...)

    Mots-clés Pascal : Rectocolite ulcérohémorragique, Enquête opinion, Evaluation, Qualité vie, Capacité fonctionnelle, Fiabilité, Maladie inflammatoire, Bien être, Récidive, Relation médecin malade, Homme, Suède, Europe, Appareil digestif pathologie, Intestin pathologie, Organisation santé

    Mots-clés Pascal anglais : Ulcerative colitis, Opinion inquiry, Evaluation, Quality of life, Functional capacity, Reliability, Inflammatory disease, Well being, Relapse, Physician patient relation, Human, Sweden, Europe, Digestive diseases, Intestinal disease, Public health organization

    Logo du centre Notice produite par :
    Inist-CNRS - Institut de l'Information Scientifique et Technique

    Cote : 98-0054012

    Code Inist : 002B13B03. Création : 14/05/1998.