Are outcome data regarding the survivors of neonatal care available from routine sources ?
Aim-To determine whether existing information and surveillance systems can be used to provide follow up data on groups of infants at increased risk of disabibtyfor example, the survivors of neonatal intensive care.
Methods---A survey was made of maternity, neonatal, and community child health information systems and surveillance programmes in the Trent Regional Health Authority.
Children known to have received neonatal intensive care in Trent between 1 August 1992 and 31 July 1993, and a random sample of normal children in two health districts (data quality check) were included.
A data linkage study was made to determine whether follow up information about a random sample of infants, known to be at increased risk of poor outcome, could be identified on community child health databases.
Two widely accepted datasets (birth and 2 years) were used as standards for this exercise.
The quality of data was audited.
Result-All clinical items of the birth minimum dataset were routinely recorded by at least one agency in each health district in Trent.
Of the descriptive items, only the mother's age on leaving full time education was not collected.
At 2 years, all clinical items were collected as part of the routine surveillance programme, but data were recorded using a system which severely limited interpretation.
Data quality, in terms of the number of errors introduced at data entry, was very good with only 1.1% of the check items (41368) incorrectly recorded. (...)
Mots-clés Pascal : Soin intensif, Néonatal, Survivant, Handicap, Risque, Donnée, Source, Epidémiologie, Pronostic, Surveillance sanitaire, Méthodologie, Homme
Mots-clés Pascal anglais : Intensive care, Neonatal, Survivor, Handicap, Risk, Data, Source, Epidemiology, Prognosis, Sanitary surveillance, Methodology, Human
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 98-0043364
Code Inist : 002B30A01A1. Création : 17/04/1998.