To assess the stigmatization and psychosocial problems of persons with epilepsy in Pakistan.
A population-based, cross-sectional epidemiologic study of 241 persons with epilepsy identified from an at-risk population of 24,130 individuals (64.7% from urban and 35.3% from rural areas).
Of these patients, 77% suffered from recurrent non-febrile generalized convulsions.
We evaluated degree of stigmatizations (i.e., avoidance by friends, neighbors, and others), and the effect of epilepsy on other psychosocial aspects (e.g., marriage), and also the relationships between gender and level of education of the patients, and stigmatization.
Patients with epilepsy in Pakistan do not appear to be highly stigmatized, but their education and grades are affected by the disorder.
They have difficulty performing activities of daily living and find it hard to make decisions about whether to marry or to have children.
Women believed that they were more dangerous to others, received less help from their families, and, more frequently than men, encouraged others to avoid them.
Women were also more likely than men to express the belief that people with epilepsy should not marry, but in fact, women more frequently married as compared men-a fact influenced by social and cultural pressures, including pressure from family, because it is nearly always the responsibility of the parents to arrange the marriage of a daughter. (...)
Mots-clés Pascal : Epilepsie, Pakistan, Asie, Difficulté psychologique, Impact social, Etude transversale, Niveau étude, Sexe, Epidémiologie, Homme, Système nerveux pathologie, Système nerveux central pathologie, Encéphale pathologie
Mots-clés Pascal anglais : Epilepsy, Pakistan, Asia, Psychological difficulty, Social impact, Cross sectional study, Education level, Sex, Epidemiology, Human, Nervous system diseases, Central nervous system disease, Cerebral disorder
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 97-0524006
Code Inist : 002B17A02. Création : 13/02/1998.