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  1. Validation of a Cerebral Palsy Register.

    Article - En anglais

    Objectives 

    To analyse completeness and validity of data in the Cerebral Palsy Register in Denmark, 1979-1982.

    Methods 

    Completeness has been assessed by comparing data from The Danish National Patient Register (DNPR) with the cases included in the Cerehral Palsy Register (CPR).

    Agreement between 12 variables in the CPR and obstetrical medical records has been analysed using kappa-statistics.

    Results 

    Of 468 children in the DNPR, only 237 fulfilled the inclusion criteria of the CPR, and 35 (15%) of these cases had not been reported to the CPR.

    Data agreement was generally good, but gestational age was subject to a systematic error, and urinary infections in pregnancy (kappa=0.43) and placental abruption (kappa=0.52) were seriously under-reported in the CPR.

    Conclusions 

    Completeness of the Cerehral Palsy Register in Denmark, 1979-1982, has been assessed to maximal 85%, emphasizing the impact of using supplementary case ascertainment sources in the future.

    Validity of data varied according to definition and significance of the specific variable.

    Mots-clés Pascal : Infirmité motrice cérébrale, Registre, Enregistrement, Donnée, Epidémiologie, Méthodologie, Validité, Evaluation performance, Homme, Danemark, Europe, Système nerveux pathologie, Système nerveux central pathologie, Encéphale pathologie

    Mots-clés Pascal anglais : Cerebral palsy, Register, Recording, Data, Epidemiology, Methodology, Validity, Performance evaluation, Human, Denmark, Europe, Nervous system diseases, Central nervous system disease, Cerebral disorder

    Logo du centre Notice produite par :
    Inist-CNRS - Institut de l'Information Scientifique et Technique

    Cote : 97-0506157

    Code Inist : 002B30A01A1. Création : 13/02/1998.