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  1. Data quality in population-based cancer registration : an assessment of the Merseyside and Cheshire Cancer Registry.

    Article - En anglais

    Merseyside and Cheshire Cancer Registry (MCCR) data quality was assessed by applying literature-based measures to 27 942 cases diagnosed in 1990 and 1991.

    Registrations after death (n=8535) were also audited (n=917) to estimate death certificate only (DCO) case accuracy and the proportion of registrations notified by death certificate (DC).

    Ascertainment appeared to be high from the registration/mortality ratio for lung [1.01 : 1] and to be low from capture-recapture estimates (59.4%), varying significantly with site from oesophagus [92.2% (95% Cl 88.5-95.9) ] to breast [47.5 (95% Cl 41.8-53.2) ]. The estimated DC-dependent proportion was 20% (5601 out of 27 942) with successful traceback in 3533 out of 5601 (63. 1%) cases.

    DCO flagging (2497 out of 27 942,8.9%) overestimated true DCO cases (2068 out of 27 942,7.4%). The proportion of cases of unknown primary site was low (1.5%), varying significantly with age [0-4.2%, (95% Cl 2.5-5.9) ] and district [0.8% (95% Cl 0.3-1.3) to 2.2% (95% Cl 1.8-2.6) ]. The median diagnosis to registration interval appeared to be good (10 weeks), varying significantly with site (P<0.0001), age (P<0.0001) and district (P<0.0001).

    The proportion with a verified diagnosis was 77.3%, varying significantly with site [lung 55.2% (95% Cl 53.7-56.7) to cervix 96.9% (95% Cl 96.3-97.5) ], age [45.2% (95% Cl 40.9-49.5) to 97.5% (95% Cl 96.4-98.6) ] and district [71.8% (95% Cl 69.9-73.8) to 82.5% (95% Cl 80.7-84.3) ]. (...)

    Mots-clés Pascal : Tumeur maligne, Homme, Epidémiologie, Registre, Assurance qualité, Contrôle qualité, Indicateur, Recommandation, Evaluation, Royaume Uni, Europe

    Mots-clés Pascal anglais : Malignant tumor, Human, Epidemiology, Register, Quality assurance, Quality control, Indicator, Recommendation, Evaluation, United Kingdom, Europe

    Logo du centre Notice produite par :
    Inist-CNRS - Institut de l'Information Scientifique et Technique

    Cote : 97-0441962

    Code Inist : 002B04B. Création : 03/02/1998.