Attitudes towards ethical, legal and social issues in genetic research and practice were investigated in 402 genetic services providers from 30 provinces and autonomous regions in China.
This was done using a Chinese version of an international survey questionnaire on ethics and genetics that has been circulated in 37 nations.
In all, 255 study participants completed questionnaires (63%). The majority of the respondents (89%) reported that they agreed with the current Chinese laws and regulations on termination of pregnancy for genetic abnormalities and non-medical indications, on the basis of considerations of population control and family planning.
More than half the respondents opposed sex selection by prenatal diagnosis in the absence of an X-linked disorder.
However, most of them (86%) would prefer directive counseling.
More than half would agree to disclose genetic information to relatives at risk, and would permit third parties such as law enforcement agencies, spouse/partner, blood relatives, employers involving public safety, life and health insurers to access stored DNA without consent.
The majority (73% - 98%) also thought that DNA fingerprinting should be required for prisoners convicted of or charged with crimes, members of armed forces and all newborns.
Although these are only the first part of the results of our international survey, they provide an initial basis for international discussion on ethics and genetics in China.
Mots-clés Pascal : Génétique, Ethique, Conseil génétique, Diagnostic, Prénatal, Avortement provoqué, Questionnaire, Enquête, Information, Accès information, Homme, Chine, Asie
Mots-clés Pascal anglais : Genetics, Ethics, Genetic counseling, Diagnosis, Prenatal, Induced abortion, Questionnaire, Survey, Information, Information access, Human, China, Asia
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 97-0438254
Code Inist : 002B23A. Création : 19/12/1997.