Methods for tracing, contacting, and recruiting a cohort of survivors of childhood cancer.
Due to the use of combined modalities of multiagent chemotherapy, radiation therapy, and surgery, many children with a diagnosis of cancer are now surviving into adulthood.
This pilot study sought to determine the feasibility of establishing a cohort of childhood cancer survivors and then to develop methods to trace and contact eligible participants.
Materials and Methods
A retrospective cohort design was used.
Four hundred and forty subjects who were treated for cancer at the University of Minnesota Hospital before the age of 21, between 1970 and 1986, had survived 5 years, and were alive at last contact were eligible.
Tracing efforts were undertaken if the address was more than 2 years old or if a letter was returned by the post office.
Contact procedures in this study were designed to determine whether participation rates differed according to the method of contact.
In this cohort of 440 individuals, 11 had died and were not traced.
Of the remaining 429 eligible individuals, 408 (95.1%) were successfully contacted.
Successful tracing efforts differed by both current age and age at diagnosis.
Once contacted, 370 (90.6%) agreed to participate in this study and returned a baseline health questionnaire.
Each method of participation, and the combination of methods, showed similar percentages of participation. (...)
Mots-clés Pascal : Tumeur maligne, Côlon, Etude cohorte, Enfant, Homme, Traçabilité, Recrutement population, Relation médecin malade, Méthodologie, Epidémiologie, Appareil digestif pathologie, Intestin pathologie, Côlon pathologie
Mots-clés Pascal anglais : Malignant tumor, Colon, Cohort study, Child, Human, Traceability, Population recruitment, Physician patient relation, Methodology, Epidemiology, Digestive diseases, Intestinal disease, Colonic disease
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 97-0359963
Code Inist : 002B30A01A1. Création : 12/09/1997.