Disclosure practices and cultural narratives : Understanding concealment and silence around cancer in Tuscany, Italy.
Disclosure practices are embedded in and enact personal, professional, and societal narratives.
These narratives are not given but contested and evolving.
The medical arena constitutes an important social space in which this contestation, reproduction and change take place.
More specifically, based on ethnographic and cultural survey data, we describe and interpret the cultural sense of « not telling » about cancer within the local world of Tuscany, Italy.
We locate the traditional practice of non-disclosure of cancer diagnoses within a larger cultural narrative we call « social-embeddedness », a narrative of social unity and hierarchy, of protection from or adaptation to the inevitable necessities of life, in part by using narrative itself to construct a sense of group protection.
This narrative is being challenged, as it confronts other medical and societal narratives, such as one originating from the United States and embedded in health care practices like open disclosure, informed consent, Advanced Directives, and the Patient Self-Determination Act, what we call the « autonomy control narrative ».
Explicit disclosure to a patient about his or her illness and the future plays an important role in actualizing this narrative, in helping in the quest to control one's destiny, eliminate uncertainty and necessity, and foster a person's identity as singular and sovereign over him/herself. (...)
Mots-clés Pascal : Tumeur maligne, Homme, Interaction sociale, Relation médecin malade, Discours, Milieu culturel, Aspect social, Diagnostic, Pronostic, Communication information, Douleur morale, Pratique professionnelle, Personnel sanitaire, Italie, Europe
Mots-clés Pascal anglais : Malignant tumor, Human, Social interaction, Physician patient relation, Discourse, Cultural environment, Social aspect, Diagnosis, Prognosis, Information communication, Mind pain, Professional practice, Health staff, Italy, Europe
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 97-0307457
Code Inist : 002A26N06. Création : 15/07/1997.