The effect of chronic life-threatening illness on the family is one of the major problems confronting the health-care system today.
Increasingly, parents have the major responsibility for the daily management of their child's condition.
There is evidence that many parents lack the pofessional help and support which could ameliorate some of their problems.
It is important that nurses have an understanding of how families cope with the burden of caring for a chronically ill child.
Health professionals need clear guidelines on how to support these families in their role as primary care-givers.
This paper examines how families of children with cystic fibrosis adapt to the illness in order to provide indicators for nursing practice and to enhance the care and support provided for these families.
Effective coping strategies include : assigning meaning to the illness, sharing the burden, denial of diagnosis and incorporating therapy in a schedule.
Mots-clés Pascal : Mucoviscidose, Enfant, Homme, Milieu familial, Aidant, Parent, Aide thérapeutique, A domicile, Coping, Adaptation, Support social, Infirmier, Relation soignant famille, Appareil respiratoire pathologie, Appareil digestif pathologie, Pancréas pathologie, Maladie héréditaire, Métabolisme pathologie
Mots-clés Pascal anglais : Cystic fibrosis, Child, Human, Family environment, Caregiver, Parent, Therapeutic assistance, At home, Coping, Adaptation, Social support, Nurse, Health staff family relation, Respiratory disease, Digestive diseases, Pancreatic disease, Genetic disease, Metabolic diseases
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 97-0254763
Code Inist : 002B30A05. Création : 11/06/1997.