Employment profiles in neuromuscular diseases.
Consumer and rehabilitation provider factors that might limit employment opportunities for 154 individuals with six slowly progressive neuromuscular diseases (NMD) were investigated.
The NMDs were spinal muscular atrophy (SMA), hereditary motor sensory neuropathy (HMSN), Becker's muscular dystrophy (BMD), facioscapulohumeral muscular dystrophy (FSHD), myotonic muscular dystrophy (MMD), and limb-girdle syndrome (LGS).
Forty percent were employed in the competitive labor market at the time of the study, 50% had been employed in the past, and 10% had never been employed.
The major consumer barrier to employment was education.
Other important factors were type of occupation, intellectual capacity, psychosocial adjustment, and the belief by most individuals that their physical disability was the only or major barrier to obtaining a job.
Psychological characteristics were associated with level of unemployment.
However, physical impairment and disability were not associated with level of unemployment.
There also were differences among the types of NMDs.
Compared with the SMA, HMSN, BMD, and FSHD groups, the MMD and LGS groups had significantly higher levels of unemployment, lower educational levels, and fewer employed professional, management, and technical workers. (...)
Mots-clés Pascal : Neuromusculaire pathologie, Dystrophie musculaire, Milieu professionnel, Insertion, Réhabilitation, Homme, Système nerveux pathologie, Maladie héréditaire
Mots-clés Pascal anglais : Neuromuscular diseases, Muscular dystrophy, Occupational environment, Insertion, Rehabilitation, Human, Nervous system diseases, Genetic disease
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 97-0195425
Code Inist : 002B30A11. Création : 21/05/1997.