In a 10-week randomised cross-sectional study we used an 88-item questionnaire to assess the quality of life in 16 children (ages 8-17 years) with Crohn's disease and their families.
The questionnaire covered six domains of health-related quality of life, including disease and its treatment, social, emotional, family, education, and future aspects.
Crohn's disease affected education, with absenteeism in 12 and distraction during school work in six.
Three children had had a home tutor, and five stated their need for one.
Engaging in sports was a problem for eight children, mainly because of a lack of energy in five and the presence of a stoma in three children.
Three children had missed every PE lesson in 1 year.
Five children cited the social problem of being unable to stay over at friends'houses.
Bullying concerned parents more than the children.
Holiday difficulties included long distance traveling or lack of toilet facilities during school trips.
Elemental diet was the preferred treatment, although the majority complained about the taste.
Surgery was the most effective method of symptom control, though the resulting stoma was upsetting and restricted sports activities.
Children on steroids had more depressive symptoms.
Using the Rutter A Questionnaire, five children were designated « neurotic. » Parents'views of the severity of symptoms significantly correlated with their children's views regarding rectal bleeding, poor growth, lack of energy, and poor appetite (p<0. (...)
Mots-clés Pascal : Entérite Crohn, Symptomatologie, Traitement, Exploration clinique, Qualité vie, Questionnaire, Etude statistique, Enfant, Homme, Appareil digestif pathologie, Intestin pathologie, Maladie inflammatoire
Mots-clés Pascal anglais : Crohn disease, Symptomatology, Treatment, Clinical investigation, Quality of life, Questionnaire, Statistical study, Child, Human, Digestive diseases, Intestinal disease, Inflammatory disease
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 97-0131569
Code Inist : 002B13B03. Création : 21/05/1997.