Perception and social consequences of tuberculosis : a focus group study of tuberculosis patients in Sialkot, Pakistan.
Treatment defaulting is one of the major causes of the failure ofTB control programs.
In Bethania Hospital defaulting rates are high : 72% for the standard 12 months course and 56% for the 8 months course.
Attrition is especially important in the first weeks of treatment :<70% of the patients start the 10th week of treatment.
A focus group discussion study has been carried out to gain a better understanding of the impact of social stigmatization, treatment cost and pregnancy on defaulting.
The study population consisted of 3 male and 3 female groups each with 8 hospitalized TB patients.
The study shows that TB is perceived as a very dangerous, infectious and incurable disease.
This perception has many social consequences :
stigmatization and social isolation of TB patients and their families ;
diminished marriage prospects for young TB patients, and even for their family members ;
TB in one of the partners may lead to divorce.
Due to fear patients often deny the diagnosis and reject the treatment.
While both male and female TB patients face many social and economical problems, female patients are more affected.
Divorce and broken engagements seem to occur more often in female patients.
Pregnancy is a reason for stopping TB treatment as both are considered as incompatible.
The findings of this study reveal the urgent need for a health education campaign to convince the general population that tuberculosis is curable.
All health care providers should act as destigmatizers.
Mots-clés Pascal : Tuberculose, Mycobactériose, Bactériose, Infection, Perception sociale, Milieu culturel, Stigmate, Coût, Gestation, Croyance, Homme, Pakistan, Asie, Observance médicamenteuse, Méthodologie, Evaluation
Mots-clés Pascal anglais : Tuberculosis, Mycobacterial infection, Bacteriosis, Infection, Social perception, Cultural environment, Stigma, Costs, Pregnancy, Belief, Human, Pakistan, Asia, Drug compliance, Methodology, Evaluation
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 96-0044738
Code Inist : 002B05B02E. Création : 01/03/1996.