Following the debate over the role and funding of specialist HIV/AIDS services there has been a call for more information about the needs of people with advanced HIV/AIDS and the processes and outcomes of care.
This study describes the characteristics and problems of patients referred to two HIV/AIDS community teams in central London : Home Support Team (HST) and Community Care Team (CCT).
Data was collected prospectively for consecutive referrals.
A validated outcome measure of palliative care assessed 17 items (e.g. symptoms and anxieties), each rated 0 (best=no problem) to 4 (worst=severe problems).
In total 234 patients (HST 116, CCT 118) were referred.
Of these 215 died in care (HST 109, CCT 106).
Most (232) were male (197 homosexual), mean age 37. 8 years and 199 had AIDS at referral.
These findings suggest that staff referring patients may need further training in the recognition and management of the needs of patients and their carers and families.
The similarity of problems between these patients and those reported for cancer patients suggests that the transfer of principles of good practice between services caring for these patient groups would be beneficial.
Mots-clés Pascal : Filière soin, SIDA, Virose, Infection, Stade terminal, Immunopathologie, Immunodéficit, Support social, Besoin, Soin, Soin palliatif, Traitement communautaire, Symptomatologie, Evolution, Angoisse anxiété, Milieu familial, Equipe soignante, Homme
Mots-clés Pascal anglais : AIDS, Viral disease, Infection, Terminal stage, Immunopathology, Immune deficiency, Social support, Need, Care, Palliative care, Community treatment, Symptomatology, Evolution, Anxiety, Family environment, Hospital staff, Human
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 96-0039236
Code Inist : 002B06D01. Création : 01/03/1996.