To examine the volume and distribution of formal and informal care received by severely disabled adults living at home in the community on low incomes according to type of disease.
Design-Analysis of computerised reports from social workers which include information on disabling conditions and on the weekly hours of care at home from formal and informal sources.
Subjects-1298 severely disabled people aged 16 to 98 who received financial assistance from the Independent Living Fund in 1991-2.
Over half (733 ; 56.6% (53.8 to 59.2)) of the sample were completely unable to perform five or more of the basic activities of daily living.
On average the whole sample received 6.8 (6.1 to 7.6) hours of care at home a week from formal sources and 64.2 (62.4 to 65.9) hours from informal sources.
In seven out of 14 disease groups, less than half in each group received any formal help at home.
There were large differences in the volume of formal care within groups.
In most cases no significant differences were found within diagnostic groups between those receiving care at home from district health authorities or local authorities, or both, and those who received no help at home with regard to age, dependency score, and duration of disability.
Weekly hours of informal care were an important determinant of who received formal help in nine out of 14 groups.
Mots-clés Pascal : Système santé, Homme, Soin, Communauté, Handicap, Grave, Distribution revenu, Faible
Mots-clés Pascal anglais : Health system, Human, Care, Community, Handicap, Severe, Income distribution, Low
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 95-0584075
Code Inist : 002B30A01B. Création : 01/03/1996.