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  1. Disease-related worries and concerns : a study on out-patients with inflammatory bowel disease.

    Article - En anglais

    Objective 

    To investigate the relationship between inflammatory bowel disease (IBD) patients'disease-related worries and concerns and their disease-related data, sociodemographic variables and perceived information level with respect to IBD.

    Study design 

    Prospective evaluation of disease-related concerns.

    Setting 

    Out-patient IBD clinic of a university hospital.

    Study population 

    The study included 105 patients with IBD (72 with Crohn's disease and 33 with ulcerative colitis).

    Results 

    The issues of greatest concern to our patients were, in descending order of importance, having an ostomy bag (mean score ± SD 63.6 ± 38), the effects of medication (53.1 ± 34), having surgery (51.6 ± 36), the uncertain nature of the disease (46.5 ± 32) and energy level (41.5 ± 34).

    Patients with ulcerative colitis scored higher with respect to concern about loss of bowel control (P<0.03).

    Disease-related worries and concerns correlated poorly with disease-related data (actual disease activity, severity of the course of IBD, diagnosis, disease duration or location, medication) but showed a significant negative correlation with patients'perceived information level about IBD (t=0.2, P<0.004).

    Lower information-level scores were associated with greater concerns.

    Conclusion 

    We conclude that the patients'information level about IBD and disease-related concerns have to be considered in clinical practice.

    Mots-clés Pascal : Rectocolite ulcérohémorragique, Entérite Crohn, Exploration, Qualité vie, Epidémiologie, Influence, Statut socioéconomique, Etude statistique, Homme, Appareil digestif pathologie, Intestin pathologie, Maladie inflammatoire

    Mots-clés Pascal anglais : Ulcerative colitis, Crohn disease, Exploration, Quality of life, Epidemiology, Influence, Socioeconomic status, Statistical study, Human, Digestive diseases, Intestinal disease, Inflammatory disease

    Logo du centre Notice produite par :
    Inist-CNRS - Institut de l'Information Scientifique et Technique

    Cote : 95-0574967

    Code Inist : 002B13B03. Création : 01/03/1996.