To investigate the relationship between inflammatory bowel disease (IBD) patients'disease-related worries and concerns and their disease-related data, sociodemographic variables and perceived information level with respect to IBD.
Prospective evaluation of disease-related concerns.
Out-patient IBD clinic of a university hospital.
The study included 105 patients with IBD (72 with Crohn's disease and 33 with ulcerative colitis).
The issues of greatest concern to our patients were, in descending order of importance, having an ostomy bag (mean score ± SD 63.6 ± 38), the effects of medication (53.1 ± 34), having surgery (51.6 ± 36), the uncertain nature of the disease (46.5 ± 32) and energy level (41.5 ± 34).
Patients with ulcerative colitis scored higher with respect to concern about loss of bowel control (P<0.03).
Disease-related worries and concerns correlated poorly with disease-related data (actual disease activity, severity of the course of IBD, diagnosis, disease duration or location, medication) but showed a significant negative correlation with patients'perceived information level about IBD (t=0.2, P<0.004).
Lower information-level scores were associated with greater concerns.
We conclude that the patients'information level about IBD and disease-related concerns have to be considered in clinical practice.
Mots-clés Pascal : Rectocolite ulcérohémorragique, Entérite Crohn, Exploration, Qualité vie, Epidémiologie, Influence, Statut socioéconomique, Etude statistique, Homme, Appareil digestif pathologie, Intestin pathologie, Maladie inflammatoire
Mots-clés Pascal anglais : Ulcerative colitis, Crohn disease, Exploration, Quality of life, Epidemiology, Influence, Socioeconomic status, Statistical study, Human, Digestive diseases, Intestinal disease, Inflammatory disease
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 95-0574967
Code Inist : 002B13B03. Création : 01/03/1996.