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  1. Evaluation of oncology registry follow-up methods.

    Article - En anglais


    The accuracy and completeness of oncology (tumor) registry patient follow-up information directly affects the validity of the oncology registry system for determining outcomes, as a quality assurance measure, and for research activities.


    A study was conducted to compare the accuracy and completeness of the oncology registry patient follow-up information obtained from three sources : responses from the patient, responses from the physician, and affiliated clinic chart reviews.

    Seven hundred ninety-one patient and physician letters were sent during a 2-month period, and 122 clinic charts were reviewed.


    Physicians responded more frequently than patients (82% vs. 58%) (P<0.003).

    From the responses received, requested information regarding recurrence, treatment, quality of survival, and survival was obtained most frequently from patients.

    However, it was difficult to ascertain information about cancer status from patient responses.


    A follow-up system that delivers accurate and complete information while maintaining efficiency is a critical aspect of an oncology registry.

    Requesting follow-up information from the patient before physician contact or chart review allows for more current information while maintaining accuracy regarding cancer recurrence, treatment, quality of survival, and survival.

    Consequently, staff time required for obtaining follow-up information from physicians and/or chart reviews is lessened and costs decreased.

    Mots-clés Pascal : Tumeur maligne, Homme, Etude longitudinale, Epidémiologie, Demande information, Méthodologie, Médecin, Malade, Service hospitalier, Précision, Complétude, Etude comparative

    Mots-clés Pascal anglais : Malignant tumor, Human, Follow up study, Epidemiology, Call for information, Methodology, Physician, Patient, Hospital ward, Accuracy, Completeness, Comparative study

    Logo du centre Notice produite par :
    Inist-CNRS - Institut de l'Information Scientifique et Technique

    Cote : 95-0498995

    Code Inist : 002B04B. Création : 01/03/1996.