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  1. Teaching about cystic fibrosis carrier screening by using written and video information.

    Article - En anglais

    We performed two studies using only written and video materials to educate people about cystic fibrosis (CF) and carrier screening.

    Participants were randomized to receive written or video materials.

    All received a brief questionnaire.

    Subjects in group I (n=238) were (1) individuals in steady relationships and their partners, (2) =18 years old, and (3) not pregnant.

    Those who accepted free screening and were not demonstrable carriers were sent a letter explaining their results and another questionnaire.

    Subjects in group II (n=108) were parents seeking well child care in a university clinic.

    The main outcome measures were ability to answer questions correctly about (1) health status of CF carriers and people with CF, (2) the possibility of false-negative results, and (3) for those who had screening, the implications of their own results.

    Written and video materials were equally effective in conveying information.

    Prior to screening, subjects answered an average of 86% of questions correctly.

    Subjects with less formal education answered fewer questions correctly ; 60% of those with less than a high school education had adequate knowledge of the health consequences of having CF or being a carrier, compared with =94% of college graduates.

    Performance improved after screening.

    Where neither partner was a demonstrable carrier, 88% knew their own and their partner's test results, and 90% indicated that their risk of having a child with CF was not zero.

    Mots-clés Pascal : Mucoviscidose, Homme, Questionnaire, Education, Information public, Communication écrite, Vidéocommunication, Dépistage, Porteur, Appareil respiratoire pathologie, Appareil digestif pathologie, Pancréas pathologie, Maladie héréditaire

    Mots-clés Pascal anglais : Cystic fibrosis, Human, Questionnaire, Education, Public information, Written communication, Videocommunication, Medical screening, Carrier, Respiratory disease, Digestive diseases, Pancreatic disease, Genetic disease

    Logo du centre Notice produite par :
    Inist-CNRS - Institut de l'Information Scientifique et Technique

    Cote : 95-0416017

    Code Inist : 002B30A03A. Création : 01/03/1996.