Health-related quality of life (HRQL) measures have been developed from the utilitarian ethical perspective of public health medicine which may be contrasted with individual-centred indicators ; these empahsise the unique experience of a patient.
The impairment-disability-handicap framework provides a more complete description of disease consequences and health outcomes than a generic HRQL indicator.
The assessment of reliability and validity of HRQL indicators is often carried out inappropriately : population repeatability is measured when an indicator will be used to examine changes in individuals ; between observer variation may be large compared with variation between populations.
Content and construct validity are usually measured but the more important predictive validity is neglected.
Effect sizes of HRQL indicators are likely to be inflated by use of between subject estimates of variance but the more appropriate within subject variance is seldom reported.
HRQL indicators are of very limited value for many clinical and public health tasks :
monitoring health of individuals and populations ;
evaluating the effects of health and social policy ;
allocating resouces ;
evaluating the effects of treatment.
Alternative methods of assessment derived from the impairment-disability-handicap conceptual framework are preferable.
Mots-clés Pascal : Qualité vie, Pronostic, Homme, Santé, Méthode mesure, Echelle évaluation, Validation test, Fidélité test, Psychométrie
Mots-clés Pascal anglais : Quality of life, Prognosis, Human, Health, Measurement method, Evaluation scale, Test validation, Test reliability, Psychometrics
Notice produite par :
Inist-CNRS - Institut de l'Information Scientifique et Technique
Cote : 96-0002467
Code Inist : 002B30A01A1. Création : 01/03/1996.